9 May 2008 - 9:557-year-old plagued by mystery illness

This is from KSL TV Utah

Two years ago, Tiffany Searle was an active, happy, healthy little girl. Today she’s confined to a wheelchair. The 7-year-old with bright eyes and big smile now has a body that hangs like a rag doll, muscles that she can hardly move, and no one knows why — not her parents Scott and Valerie, not even her doctors.

Scott said he was told, “I’m sorry to inform you but your daughter has something so rare that we don’t even know what to test for.”
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A young lady (10yrs old) here in town has been in and out of the hospital so many times that everyone there knows her name.
Her troubles have been diagnosed as “beats us” but it must be……. and let’s try……..

She finally got a doctor who said that one of her primary problems was Chrome’s.
When another doctor said she hadn’t tested positive, the response was a very simple, “here’s why it’s chrome’s, and you needed to run a more advanced battery of tests.”

Just before my sister died(of other causes, at age 34) she was diagnosed with lupus. She had suffered from it since her teens, but the basic tests showed nothing. It took a specialist at UCLA to come up with the proper diagnosis and the reason why it had slipped past the priliminary screening.

The basic problem is there are too many patients, too many diseases, too many possible tests, and too few doctors who know enough about the particular problem at hand.
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In this case, maybe a little publicity will bring someone forward who can help, or maybe even an offer from one of the advanced children’s hospitals.